1. What is the way forward for Nigeria with respect to Sickle Cell Disorder?
Mainly preventive approach through awareness education, GENOTYPING, distinguishing genotype from Blood Group, and making informed decisions as appropriate.
2. How enormous is the burden of SCD in Nigeria?
Nigeria carries the highest burden of SCD worldwide in terms of number, poor prognosis and greatest severity.
3. What is responsible for the enormous burden of SCD in Nigeria?
Genetic inheritance of associated genes leading to…
– Malaria environment
– Lack of knowledge and awareness
– Lack of government active intervention
– Poverty in communities
4. Why is the burden more than that of others in the West African subregion?
5. What is the best approach to reduce the number of those affected by SCD in Nigeria?
The best approach is prevention.
6. Does the disorder affect more of the poor or the rich people in Nigeria?
No, it affects all sectors.
7. Does the disease affect Christians only or Muslims only?
No, it affects both Christians and Muslims
8. Do all the people affected by SCD die before they are 30 years of age?
No, as only God determines when one dies. But a larger number of SCD affected die before the age of 5 especially in communities with little or no education, and most others have a shorter life-span.
9. Once those affected do not die at very early age, can they outgrow the disease?
No, you do not ever outgrow it. It lasts your whole lifetime
10. Can those not medically qualified assist in the fight against Sickle Cell Disease burden?
It is a grassroot problem, it’s not only for medical people. Anyone can be of good use in helping to reduce the burden of SCD in Nigeria.
11. What is the expected role of the Federal Government in reducing the scourge of the disease in Nigeria?
The Federal Government is yet to make a categorical stand on how best to control this dreaded disease in Nigeria.
12. What role can the Local Govts play in reducing the burden of SCD in Nigeria?
LGAs can organize an awareness programme on a regular basis and also set up a Genotype Screening Programme for all youths in its LGs.
13. Can members of the public team up with SCHAF for reducing the burden of SCD in Nigeria?
Yes, that is very much desired. They can do a lot by donating to fund the programme, sharing in the care of the patients known to them and assisting in the care and empowerment of those affected by SCD.
14. In what way can members of the public help SCHAF if they become members?
15. How early can this disease be detected / diagnosed in a child?
16. Who can be held responsible for giving this disease to a child?
Father and mother
17. What are the common medication/ medicines that those affected must use regularly?
Anti-Malarias, BCo, Folic Acid, Multivitamins, Analgesics
18. Is it true that SCD people are normally brilliant?
Yes, they are as brilliant as their colleagues not affected by SCD
19. What is the difference between Genotype and Blood Group?
Genotype is the type of Haemoglobin inside the red blood cells while Blood Group is determined by the antigen/antibody status on the red blood cell surface.
20. Is it advisable to have all children do Genotype and Blood Group Tests?
Yes – most important such that all children by age 1year and above can be screened in a recognized center and a proper card given so such results last a lifetime. You won’t have to repeat the tests again.
Contact: firstname.lastname@example.org or call +234 810-819-2619 or +234 806-244-3310 to volunteer today!