2017 WSCD RALLY by SICKLE CELL HOPE ALIVE FOUNDATION (SCHAF)
“…Sickle cell disease is a disorder of the blood and Nigeria is the leader in this problem. “We have the greatest problem, the largest number of people who can transmit this disease as trait. “We have the largest number of patients who are receiving care. “So, we need to attend to this problem and be able to control the disease by letting people know early in life what to do with themselves and make their own informed decision by knowing their genotype on time not when they want to marry. “We keep appealing to government to merge genotyping with immunization so we don’t have to tell people to go and pay for it. “Then, we also want to take care of people who already have the disease. “They are part of the society; we should have special treatment for them in the hospitals; they are constantly in pain and they have problems. “We want to bring the attention of everybody to this disease so that they can help take care of them and we can also help our youths control this disease…”
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Above is a media report of the Awareness Rally facilitated by SCHAF which was held in Ibadan on Monday, 19th June, 2017 to mark the 2017 WORLD SICKLE CELL DAY. The Community Rally started from Bodija through the market, to Agbowo, UI frontage and ended at the Mechanic Village/Work station, adjacent to the Trans-Amusement Park, Agbowo. The Focus of this year’s Rally was to bring Awareness & Education on SCD directly to Artisans in the language they understand and in their place of work. The Rally was well attended by over a 100 individuals.
The highlight was the release of a 21-Minute SCD Documentary right at the end of the Rally for immediate distribution and free of charge. This was to further create awareness of Sickle Cell Disease and its challenges, to sensitize for the possibility of disease prevention through INFORMED DECISION as well as increase sensitization for assistance to affected individuals in our community.
Another notable outcome of the rally was imploring the Government to add SCD screening to immunization schedule to effectively diagnose early, leading to early referral and prevention of parents from paying several times at a much older age for their wards when complications have already set in.